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Monday, April 8, 2013

It has always been my intention to bring the truth to this blog. Since the beginning of the year I have been having a lot more upper abdominal symptoms. I have been spending more days in bed. It seems that I would have acute symptoms be down for 2-3 days and then spend one taking it easy and then the mad dash is on to catch up what has been missed since my initial symptoms began. Then in 3-4 days back down I would go.
I am also have a difficult time keeping weight on. I have lost about 20 plus pounds in the last 13 months. I have reached the lowest weight that I can remember. I believe I am smaller now than when I was 12 years old. I was never a small girl before the term of pancreatitis became an everyday word.
On Wednesday March 28, 2013 I began to have the upper abdominal and back radiating symptoms that I knew were bad. It feels as though someone or something has kicked me in the chest below my sternum. This time I knew it was different I could not go to sleep, normally if I go to bed I will just go to sleep and sleep through most of it.
In the wee hours of the morning my husband was driving me to the ER. I declined admission but was administered pain relief and nausea meds. I forgot to say that as soon as I hit triage I began to vomit as soon as the nurse said " May I help you"? I began to vomit into the bucket I was carrying.
The long short of it all... I had elevated liver enzymes again.
alkaline phosp  261
AST ( SGOT) 230
Alt   (SGPT) 155
It has been almost 2 weeks and I am still not back to me. I stay tired and don't have much stamina. I was given a referral to a local GI. I tried to call but who ever answered the phone wouldn't make me an appointment because that physician was NOT on call that noc. Even though I don't want to see the one that was on call. On to bigger and better things. I am under no illusions, there was no one here who could help me prior to the tp/ict I doubt that they can now. I still occasionally get the " you can't live without a pancreas". Guess I am dead then! This thing I know I don't have a pancreas and don't WANT one.
On a positive note, had my HA1C checked 6.0 not where I like it to be, but this I can work on. Usually I am 5.7-5.9. I am still within a non diabetic range and want to keep it that way.
Lisa

Wednesday, January 2, 2013

Still here 6 years after surgery

I don't post frequently because the mundane aspects of life are boring. No one likes a blog where people say " well I took the trash out today".
Years, looking back many now my husband and I set out to chronicle my life. My life back then if one could call that a life I call it an existance.
The emails from others who know the pain come less frequently. My purpose was to chronicle what happened after ground breaking surgery.
I have survived 6 years post surgery, taking each day as they come. I have attempted to be transparent to all. I still have pain, and there are days that are spend in bed flat, but there are days that are full of joy.
My only goal is to attend church service 3 times per month. I manage my time with the daily aspects of life and my only hobby is machine embroidery which is not real physically taxing. I have 2 grand daughters who love to have Disney princesses embroidered on their t shirts and such. Being unable to get out for lessons it is amazing what one call learn from you tube and yahoo groups.
I have added a picture taken of me and my dear sweet husband. We were at a formal event. I am so very proud of him. If anyone has read the blog Michael was working on his BSN and last year he finished is MSN. Currently he is a nurse practitioner. No one ever said life would be easy, but Jesus promised he would be with us. This I have learned to be true. To God be the Glory!
I praise you for I am fearfully and wonderfully made; your works are wonderful,I know that full well. Psalm 139:14 NIV

About Me

I am a wife and a mom. I have 2 cat children that I adore. I suffered for 10 years with chronic pancreatitis. I suffered horribly, no one should have to live I like I did.