I wanted to let anyone who has ever kept up with the blog know that I am still here. I have celebrated the 5th anniversary of my surgery tp/ict. Our lives this years have been so busy. My husband just finished his Masters in Nursing. He will sit for his NP exams very soon. My days were spent packing lunches, trying to keep up with the laundry and the house. For those with chronic illness, you understand how difficult minor tasks can be at times. Even though I did not earn an academic degree somehow I feel like I have accomplished something, by just doing what I have done. This self directed learning procees was so intense, he did not have time to focus on anything but school.
I make posts when I do to let those searching know that 5 years out, I am still here, enjoying my life. I don't want to give people false hope, I suffered for 10 long years waiting for something. I still have deficits, I still have pain, but this pain is controllable, the other was not. I still have times when I have to lay in bed which btw is my least favorite thing in the world, but that seems to be something that assists with the pain, so lay down I will do. I have survived long enough to see my only child marry, give birth.. twice. Hold two precious little girls who have their grandmothers eyes. What more could a person want? If you are on the fence deciding about surgery... don't wait another minute. Don't let pancreatitis steal one more minute of your life.
Yes, I check my blood sugars frequently, my last HA1C was 5.7 equal to that of a non diabetic. I also give insulin every night ( just to keep those little islet happy and snug as a bug in a rug in my liver) to answer the next question the amount Lantus is 3.5 ( yes I said 3 point 5 not thirty five). I purchase special insulin syringes that measure half units. I eat a lower cab diet. Carbohydrates are the building blocks we need to burn as fuel, so eliminating ALL carbs in not the answer, without some carb we burn muscle. I am here if there are any QUESTIONS that some may have. After reading my blog you have probably determined that I am a Christian. I will leave this post with this scripture.
19 This day I call the heavens and the earth as witnesses against you that I have set before you life and death, blessings and curses. Now choose life, so that you and your children may live 20 and that you may love the LORD your God, listen to his voice, and hold fast to him. For the LORD is your life, and he will give you many years in the land he swore to give to your fathers, Abraham, Isaac and Jacob.
Deuteronomy 30-19
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2 comments:
Hi. I also had this surgery in April 2006. I have been really bummed about still needing some (not much) pain medication, and my continued pain after eating. I went back to work after the surgery, but last year found myself unable to move another step. I took a medical leave for 9 months, went back to work again, and only lasted 2 months. I'm now back on medical leave and my doc thinks it's just the result of my compromised system. I am desperate to talk to others who have experience with this. I would love to find someone to chat with. If you know of groups, please tell me how to find them. Thanks.
Ginny, I would love to talk with you. I don't know that I will have the answers that you seek, but I can sure understand where you are in life. I don't have an email address where I can contact you. There are many great yahoo groups that deal with the issue of pancreatitis. There are a few post pancreatectomy groups also. I am the co moderator of such a group.
Here is a link. The first link I co moderate and the second I belong too.
http://health.groups.yahoo.com/group/TotalPancreatectomy/
http://health.groups.yahoo.com/group/PancreatectomySurvivors/?yguid=224755783
You can reach me at LRSmith84@yahoo.com
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