It has been such a long time since my last post. We have had many celebrations since my surgery, and felt the need to blog today.
I have become a grandmother. My dg was born 2-11-08 and her name is Madeline Riley Herth. I was present during her birth and actually got to cut the cord, as her father didn't think he could do it. She is a much loved little girl and like her mother, she is spirited. That is my way of saying she is a handful.
It is with great regret that I post my mothers husband passed away last month. He had been in the hospital since March 6, 2008, he passed May 28, 2008.
The topic of this blog is to chronicle life after tp/ict. My quality of life is better. I am able to eat without rolling in the floor screaming. I still have chronic pain. I have pain after eating and through out the day. Life isn't easy, and I have not returned to work. However, I do consider the surgery somewhat successful. I do have a few days where I can accomplish things. I have some bad days where I find it difficult to get dressed. I have always been the type of person where I will do what ever I can to get done what needs to be done. If it meant taking the tube feeding off the pole and carrying the pump and solution down stairs to another pole and staying down there to get the laundry done ( while tube feeding myself) well that is what was done. Someone had to wash the clothes and at the time my husband was working and a full time college student.
Michael finished his bachelors in nursing in the summer of 2007. He was of course 1st in his class. Currently we are looking at NP school. He is attempting to switch jobs so that he can full fill his clinical obligation. NP education requires a certain amount of clinical time observed by a physician and it must be done around your schedule. It is impossible to work M-F 7-3:30 and accomplish the clinical requirements so we are looking for a weekend option position.
It is my hope to post some pictures of the events of the last year. I will however need to find them first so that I can post them. Most likely the pictures are divided between 4 computers. OH, the joys of technology.
Lisa
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5 comments:
I am up late because of pancreatitis and all its lovely symptoms. Your blog made me cry. Just to read that someone else, somewhere out there someone else knows the pain of this-it's such a relief. Thank you for sharing...
Lisa,
I am so glad I found you blog please contact me if you have time my finace is fixing to have the same surgery you did and i would love to talk to you just to kind of know what to expect. my email address is larahill1@att.net. Thanks for all the information I have read so far.
Lara
Wow I just found your blog, and I know that I am a complete stranger but I must write. I am married with 4 children. I suffered from Hereditary Pancreatitis for 17 years! I too had ERCP's but I was told that Stents would resect into the pancreas and to never use them. So sorry. I had the entire pancreas removed in 2007 in Seattle, WA. I too get crazy reaction when I tell them I live without a pancreas and I too replied when asked which type of diabetes do you have, "you tell me" How funny.
My question for you: I now take three Pancrease MT16 capsules with every meal. My family doc is freaked out that this can cause Fibrosing Colonopathy, long story. Do you take these pills and have you heard of this very real side effect?
Thank you for sharing your story. I'm 25, and scheduled for the tp/iat in 11 days. I'll be part of the U of MN's study. I'm scared, but I feel like this is my only hope of ever feeling better. I just want part of my life back.
Amanda, are you having the Total Pancreatectomy? Im unsure of the spelling.I did and life is great without pain, but using a pump and taking a ton of pancreatic pills gets old. Surgery was the best answer for me. It was at Virginia Mason in Seattle, WA
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